Showing posts with label Treatments. Show all posts
Showing posts with label Treatments. Show all posts

Saturday, February 12, 2011

Enrollment Opportunity for Autism Clinic Trials

Below is a letter from Dr. George M. Joseph regarding recruitment for the ConnectMe
study. If interested, contact Dr. Joseph's office at 904-280-3552 for for more information, visit www.connectmeclinicaltrial.com.

Hello:

I am writing to you to make you aware of an exciting phase II national clinical research study for the treatment of core symptoms of autism in children—communication and socialization. George M. Joseph, MD, PA is one of 16 research centers throughout the US participating in this study, which is called ConnectMe.
As you well know, autism is clearly a disorder with tremendous unmet medical, educational, and other needs. Scientific advances continually provide researchers with new insights into the spectrum of autism disorders and that is why we at George M. Joseph, MD, PA are especially hopeful about the ConnectMe study. The protocol for this study was developed in close collaboration with the US Food and Drug Administration (FDA). The Interactive Autism Network (IAN), a nonprofit organization that facilitates communication between researchers and families with autistic children is also engaged with this study. The investigational medication being studied in ConnectMe contains the active ingredient memantine hydrochloride, in a formulation, dosage and administration schedule appropriate for (and unique to) pediatric patients. Memantine hydrochloride has been deemed safe for use in an adult patient population, and the pediatric formulation has been and continues to be closely monitored in pediatric patients with autism who are participating in this study. While this is the first double blind, placebo controlled study of memantine in autism, a publication of an individual physician’s clinical practice experience in children with autism showed improvements in language function and social behavior.* The ConnectMe study is designed to confirm or challenge those earlier findings. Regardless of the outcome, this study will be a landmark in the field of ASDs.

Families who have enrolled their children in clinical research are to be applauded for their commitment and support of these important scientific endeavors. As you can imagine, the families who have enrolled their children in ConnectMe are very hopeful and excited to participate and to learn of the results. Recruitment for this study will continue through the fall of 2011. I urge you to encourage families in the greater (city) area with children between the ages of six and twelve who have a diagnosis of autism to contact our center to see if they are eligible to enroll in ConnectMe. If you are uncertain about a child’s diagnosis, we are more than happy to determine the presence or not of autism at no cost to the child’s family. Please forward on the following phone number and web address to those families—[904-280-3552] and www.connectmeclinicaltrial.com or if these families give permission to be contacted by us, we would be more than happy to reach out to them.

Thank you for your interest and your commitment to helping families.

Sincerely,
George M. Joseph, MD
*Journal of Child Neurology, Vol. 22, No. 5, 574-579 (2007)DOI: 10.1177/0883073807302611

Friday, September 3, 2010

Generation Rescue is accepting applications for our next grant round!

Do you or someone you know have a child with autism and want to start biomedical treatment but are unable to afford it?

It's not too late to be part of round 4 starting on SEPTEMBER 15, 2010. Send in your application by SEPTEMBER 13, 2010 to participate.

Generation Rescue is proud to offer a grant program for treatments that may not otherwise be covered privately or by other third-party funding sources such as school districts, county programs, insurance, and/or other grant making entities.

And the great news...we are now accepting applications year-round for future rounds of Rescue Family grants!!

Generations Rescue's Rescue Family grants are designed to provide support to individuals and families affected by Autism Spectrum Disorders.

Each grant recipient will receive:
- Two doctor visits with a specially-trained physician who treats autism - a D.O. or M.D.
- Vitamins, minerals and supplements for 90 days
- A Generation Rescue Rescue Mentor
- Dietary intervention training

This grant is only applicable for families who have not done biomedical treatment, with the exception of the GF/CF Diet.

Please review the questions provided below. If you can answer YES to any of the following questions, you are NOT eligible to apply.

- Has your child seen a DAN! doctor before?
- Has your child received private lab testing from Great Plains, Doctors Data, or Metametrix?
- Has your child been on anti-fungal or anti-viral therapy?
- Does your family make over the median income for your zip code?
- Does your child currently take any supplements other than fish oil?

If you or someone you know is interested in applying for the grant, please visit our WEBSITE and fill out all 6 pages of the application.

Sincerely,
The Team at GR

Monday, March 1, 2010

CARD Weekly Update - March 1, 2010

"My bicycle means a lot to me. I feel I am in control when I ride my bicycle
and it helps me work out my frustration and aggravations so I can be a better person."

-Jessica Green

On Saturday, the Jessica Green Foundation (www.jessicagreenfoundation.org) will hold the third annual Ride with Me event to promote autism awareness and raise funds to support autism initiatives in our area. The foundation is extending an invitation to all families with a family member with autism to come out to the event March 6th at Camp Milton and participate in the bike ride for FREE! You will not be required to pay for registration or meet the fundraising requirements, however you will receive the 2009 shirt (not the 2010) and will need to purchase food should you choose to stay for lunch. For more information, http://ridewithmeforautism.org/jessica.html

I hope to see you there!



Mae Barker, Ph.D., BCBA-D

Clinical Director

Center for Autism and Related Disabilities

UF College of Medicine - Jacksonville



Upcoming Trainings/Events:



· Provide Feedback on Upcoming Changes to DSM Autism Criteria: The website for the American Psychiatric Association (APA), the agency which writes and publishes the Diagnostic and Statistical Manual of Mental Disorders, has recently posted details of the newest edition, which include changes to the diagnosis and organization of autism spectrum disorder. The website is currently encouraging comments on the soon-to-be-published edition. Individuals can register, learn about the changes, and give the publishers feedback directly from the APA website. http://www.dsm5.org/ProposedRevisions/Pages/proposedrevision.aspx?rid=94#

· Rethink Autism & Autism Speaks – Treatment and Resources Webinars: Autism Speaks, in partnership with Rethink Autism, presents a FREE live webinar on autism treatment options and resources for families with recently diagnosed children: Wed, March 3, 2010 7:00 PM - 8:00 PM EST . Join us for an orientation for parents and family members of children recently diagnosed with an autism spectrum disorder. Info: www.rethinkautism.com/Community/webinars/default.aspx

· Third Annual Ride with Me for Autism: On Saturday, March 6, 2010, the third annual Ride with me for Autism Bike Tour begins and ends along the Jacksonville-Baldwin Rail Trail in Jacksonville, Florida. This event raises funds and awareness for the Jessica Green Foundation for autism support. The ride has choices of 10-mile, 29-mile, and 100k/62-mile bicycling routes, as well as shorter fun rides, so the entire family can come out and participate. A healthy breakfast is served for all riders. There will be vendors, food, music, and ToeKnee the clown. www.ridewithmeforautism.org. The Jessica Green Foundation has extended a special invitation for Autistic families to ride for free.

· 26th Annual Conference on Services for Children with Special Needs - Birth to Five: This year’s conference will be held Schultz Center (4019 Bourlevard Center Dr., Jax), April 1, 2010, and features lectures on literacy, play, behaviors, social skills, sign language, enrichment techniques, and nutrition. The full brochure for this event listing sessions and speakers is available on the CARD webcalendar: www.hscj.ufl.edu/pediatrics/autism/calendar_events.asp.

· “Inclusive Education for Children with Autism Spectrum Disorders” - April 19, 2010: Plot a Course, Set Sail, Have a Guide, Keep Learning,” Presented by Dr. Dennis Mozingo, BCBA-D. Dr. Mozingo is an Assistant Professor of Pediatrics in the Community Consultation Program of the Strong Center for Developmental Disabilities, Division of Neurodevelopmental and Behavioral Pediatrics, University of Rochester Medical Center. During this workshop, participants will learn how to plan for the inclusion of students with ASD in general education settings, prepare students for inclusion in ESE settings, support students with ASD in the general education setting, and monitor student performance. . All events listed run from 9:00 am to 4:00 pm, and are provided at no cost to participants. The First Coast Association for Behavior Analysis will be partnering with CARD to offer CEU’s for two upcoming workshops. You will need to preregister (registration is free) online. CEU’s can be purchased at the event.

· “Using Video Based Interventions to Support Individuals with Autism Spectrum Disorders” - May 14, 2010: Presented by Dr. Linda LeBlanc, BCBA-D. Dr. Le Blanc is an Associate Professor in Psychology for the University of Auburn. Video modeling is an instructional technique that can be used to teach social skills, academic skills, and daily living skills and play skills to children with autism. This workshop will review the important components of effective video models, examine the research support for use of video models, and demonstrate ways to incorporate video when using other instructional procedures. . All events listed run from 9:00 am to 4:00 pm, and are provided at no cost to participants. The First Coast Association for Behavior Analysis will be partnering with CARD to offer CEU’s for two upcoming workshops. You will need to preregister (registration is free) online. CEU’s can be purchased at the event.

· Survey for Parents of Students with an Individual Educational Plan (IEP) in Exceptional Student Education (ESE). Beginning Feb 01 and ending July 01, 2010, the Florida Department of Education will be collecting parent surveys on “How well is your school supporting your involvement in your child’s education?” Follow this link to complete the survey: www.ESEsurvey.com. Results, which are reported directly to the United States Department of Education, will contribute to Florida’s Annual Performance Report and will be posted for the public at www.fldoe.org/ese.



Flyers for these events can be accessed online @ http://www.hscj.ufl.edu/pediatrics/autism/calendar_events.asp



CARD Logo_02_gif.gif

Ongoing Clinics & Programs:



Ø CARD Toy Bank Program: UF-Jacksonville CARD would like to build a Toy Bank where families in need can get toys and educational materials for use with their child. Please consider donating any of your slightly or unused toys, books, educational items, folder games, visual supports, or other materials to our center to support other families. To donate, please drop your materials to the front office at: UF-Jacksonville CARD, 6271-1 St. Augustine Rd., Jacksonville, FL 32207, For more information please call 633-0760



Ø Social Skills and Support Groups: Dr. Maria Tapia, Licensed Psychologist with the UF/Jacksonville's CARD program, runs several groups for adolescents and adults with Asperger Syndrome, as well as, for their siblings and mothers. If you are interested in joining any of these groups or gathering additional information, such as date, time and ages, please contact Dr. Tapia at maria.tapia@jax.ufl.edu or 633-0760.



Ø Dr. Barker has developed a parent training program to address the topic of, “Learning to play with your child with autism.” Log onto http://card-usf.fmhi.usf.edu/online_training.asp and click on the PowerPoint presentation entitled: “Learning to play with your child with autism”. Be sure you have reviewed the appropriate directions which are attached to this update. If you are a parent or caregiver, download play training directions and if you are a professional or trainer, download play training professional letter. Please email mae.barker@jax.ufl.edu with any questions or concerns.



Ø “Promoting Positive Behavior Change”: This clinic will be replacing the Positive Parenting series that was previously being run Dr. Mae Barker. This clinic is an overview of Pivotal Response, using reinforcement, addressing challenging behaviors and setting up the home environment. This would be great for families of children who have been recently diagnosed on the autism spectrum or parents of older children who simply need a refresher on the basics. Contact Dr. Barker at mae.barker@jax.ufl.edu.



Ø “Behavioral Detective” Social Skills Camp: This clinic offered by Katrina Ressa, B.S., BCaBA, & Anthony Rhodes, M.S., CARD Educational Coordinators, is a 7-week long camp for children diagnosed with Asperger Syndrome or HFA ages 6-12. This camp targets skills such as conversational skills, anger management, accepting making mistakes, being more flexible and more. For more information on signing up for our spring camp, please contact Katrina at katrina.ressa@jax.ufl.edu.



Ø Pre-K Social Skills Clinic: This clinic, offered by Elise Bowers. Parents will learn strategies for engaging their child, promoting communication and conversation, turn-taking, developing joint attention and other social skills. Parents will also learn how to practice, prompt and reinforce their child’s socialization. For more information, please contact Elise at elise.bowers@jax.ufl.edu.



Ø Two Feet Forward: This clinic, offered by Anne Wilson, MST, BCaBA, CARD Educational Coordinator, is for parents of a student in transition. During the meetings parents will learn about transition issues including IEPs & Transition IEPs, Self-Determination & Self-Advocacy, Portfolios, Interest Inventories & Assessments, Post-Secondary Options, Government Benefits, Service Providers & Changes in Services , Barriers, Work Related Issues, and much more! For more information, please contact Anne at anne.wilson@jax.ufl.edu.



Ø Discovering Capabilities: This clinic will be offered by Anne Wilson, MST, BCaBA, CARD Educational Coordinator. This is a student and parent support group. Students discover who they are, what their strengths and talents are, what they want to do in the future, how will they get where they want to be, and who will provide their supports. Discovery provides direction for future career development. Information gathered is placed in a Student Profile for the purpose of sharing the information for job development. The information guides the selection or creation of future jobs in the community. Discovery is for students: between the ages 16 – 19, in transition, planning their future or need guidance planning their future, developing a future plan, identifying individual strengths, needs, etc., writing goals, and identifying supports. For more information, please contact Anne at anne.wilson@jax.ufl.edu.

Tuesday, February 23, 2010

CARD Weekly Update

“A door opened and I went through it.”

- Temple Grandin



Last night, I finally watched the HBO movie Temple Grandin. The movie fabulously portrayed the life of Temple Grandin – an inventor, a scientist, and a remarkable individual with autism. Temple’s writings, her presentations, and now her movie have greatly added to the public’s understanding of autism. Temple is a testament to the remarkable strengths and potential of individuals with autism. I highly encourage you to see the movie and allow yourself to see the world through the eyes of Temple Grandin. http://www.hbo.com/movies/temple-grandin/index.html



Best regards,



Mae Barker, Ph.D., BCBA-D

Clinical Director

Center for Autism and Related Disabilities

UF College of Medicine - Jacksonville



Upcoming Trainings/Events:



· Rising Stars Baseball: Registration Now Open. Practice begins February 27th and games start on March 13th. The Rising Stars Baseball Division of Ponte Vedra Athletic Association is created to give girls and boys 8-15 from the Jacksonville area who are unable to "SHINE" in our traditional little league an outlet to have fun with baseball, build self confidence, teamwork skills, lasting memories and friendships. By creating ability-specific levels and a high coach to child ratio, RISING STARS BASEBALL is able to support a range of abilities: from mild coordination concerns to moderate gross motor planning challenges. For kids that have been apprehensive about baseball or didn't feel they were skilled enough, RISING STARS is also a great way to start playing the game. After two instructional practices the kids will be playing baseball in a "sandlot" format. The cost to participate in RISING STARS is FREE due to league support and contributions of our sponsors; Microsoft, HEAL, and the Greenwood School and many individual supporters. For more information go to www.risingstarsbaseball.org.

· Third Annual Ride with Me for Autism: On Saturday, March 6, 2010, the third annual Ride with me for Autism Bike Tour begins and ends along the Jacksonville-Baldwin Rail Trail in Jacksonville, Florida. This event raises funds and awareness for the Jessica Green Foundation for autism support. The ride has choices of 10-mile, 29-mile, and 100k/62-mile bicycling routes, as well as shorter fun rides, so the entire family can come out and participate. A healthy breakfast is served for all riders. There will be vendors, food, music, and ToeKnee the clown. www.ridewithmeforautism.org

· “Inclusive Education for Children with Autism Spectrum Disorders” - April 19, 2010: Plot a Course, Set Sail, Have a Guide, Keep Learning,” Presented by Dr. Dennis Mozingo, BCBA-D. Dr. Mozingo is an Assistant Professor of Pediatrics in the Community Consultation Program of the Strong Center for Developmental Disabilities, Division of Neurodevelopmental and Behavioral Pediatrics, University of Rochester Medical Center. During this workshop, participants will learn how to plan for the inclusion of students with ASD in general education settings, prepare students for inclusion in ESE settings, support students with ASD in the general education setting, and monitor student performance. . All events listed run from 9:00 am to 4:00 pm, and are provided at no cost to participants. The First Coast Association for Behavior Analysis will be partnering with CARD to offer CEU’s for two upcoming workshops. You will need to preregister (registration is free) online. CEU’s can be purchased at the event.

· “Using Video Based Interventions to Support Individuals with Autism Spectrum Disorders” - May 14, 2010: Presented by Dr. Linda LeBlanc, BCBA-D. Dr. Le Blanc is an Associate Professor in Psychology for the University of Auburn. Video modeling is an instructional technique that can be used to teach social skills, academic skills, and daily living skills and play skills to children with autism. This workshop will review the important components of effective video models, examine the research support for use of video models, and demonstrate ways to incorporate video when using other instructional procedures. . All events listed run from 9:00 am to 4:00 pm, and are provided at no cost to participants. The First Coast Association for Behavior Analysis will be partnering with CARD to offer CEU’s for two upcoming workshops. You will need to preregister (registration is free) online. CEU’s can be purchased at the event.

· Survey for Parents of Students with an Individual Educational Plan (IEP) in Exceptional Student Education (ESE). Beginning Feb 01 and ending July 01, 2010, the Florida Department of Education will be collecting parent surveys on “How well is your school supporting your involvement in your child’s education?” Follow this link to complete the survey: www.ESEsurvey.com. Results, which are reported directly to the United States Department of Education, will contribute to Florida’s Annual Performance Report and will be posted for the public at www.fldoe.org/ese.



Flyers for these events can be accessed online @ http://www.hscj.ufl.edu/pediatrics/autism/calendar_events.asp



CARD Logo_02_gif.gif

Ongoing Clinics & Programs:



Ø CARD Toy Bank Program: UF-Jacksonville CARD would like to build a Toy Bank where families in need can get toys and educational materials for use with their child. Please consider donating any of your slightly or unused toys, books, educational items, folder games, visual supports, or other materials to our center to support other families. To donate, please drop your materials to the front office at: UF-Jacksonville CARD, 6271-1 St. Augustine Rd., Jacksonville, FL 32207, For more information please call 633-0760



Ø Social Skills and Support Groups: Dr. Maria Tapia, Licensed Psychologist with the UF/Jacksonville's CARD program, runs several groups for adolescents and adults with Asperger Syndrome, as well as, for their siblings and mothers. If you are interested in joining any of these groups or gathering additional information, such as date, time and ages, please contact Dr. Tapia at maria.tapia@jax.ufl.edu or 633-0760.



Ø Dr. Barker has developed a parent training program to address the topic of, “Learning to play with your child with autism.” Log onto http://card-usf.fmhi.usf.edu/online_training.asp and click on the PowerPoint presentation entitled: “Learning to play with your child with autism”. Be sure you have reviewed the appropriate directions which are attached to this update. If you are a parent or caregiver, download play training directions and if you are a professional or trainer, download play training professional letter. Please email mae.barker@jax.ufl.edu with any questions or concerns.



Ø “Promoting Positive Behavior Change”: This clinic will be replacing the Positive Parenting series that was previously being run Dr. Mae Barker. This clinic is an overview of Pivotal Response, using reinforcement, addressing challenging behaviors and setting up the home environment. This would be great for families of children who have been recently diagnosed on the autism spectrum or parents of older children who simply need a refresher on the basics. Contact Dr. Barker at mae.barker@jax.ufl.edu.



Ø “Behavioral Detective” Social Skills Camp: This clinic offered by Katrina Ressa, B.S., BCaBA, & Anthony Rhodes, M.S., CARD Educational Coordinators, is a 7-week long camp for children diagnosed with Asperger Syndrome or HFA ages 6-12. This camp targets skills such as conversational skills, anger management, accepting making mistakes, being more flexible and more. For more information on signing up for our spring camp, please contact Katrina at katrina.ressa@jax.ufl.edu.



Ø Pre-K Social Skills Clinic: This clinic, offered by Elise Bowers, M.A., CARD Educational Coordinator is offered in two sessions: emergent-language and verbal. Parents will learn strategies for engaging their child, promoting communication and conversation, turn-taking, developing joint attention and other social skills. Parents will also learn how to practice, prompt and reinforce their child’s socialization. For more information, please contact Elise at elise.bowers@jax.ufl.edu.



Ø Two Feet Forward: This clinic, offered by Anne Wilson, MST, BCaBA, CARD Educational Coordinator, is for parents of a student in transition. During the meetings parents will learn about transition issues including IEPs & Transition IEPs, Self-Determination & Self-Advocacy, Portfolios, Interest Inventories & Assessments, Post-Secondary Options, Government Benefits, Service Providers & Changes in Services , Barriers, Work Related Issues, and much more! For more information, please contact Anne at anne.wilson@jax.ufl.edu.



Ø Discovering Capabilities: This clinic will be offered by Anne Wilson, MST, BCaBA, CARD Educational Coordinator. This is a student and parent support group. Students discover who they are, what their strengths and talents are, what they want to do in the future, how will they get where they want to be, and who will provide their supports. Discovery provides direction for future career development. Information gathered is placed in a Student Profile for the purpose of sharing the information for job development. The information guides the selection or creation of future jobs in the community. Discovery is for students: between the ages 16 – 19, in transition, planning their future or need guidance planning their future, developing a future plan, identifying individual strengths, needs, etc., writing goals, and identifying supports. For more information, please contact Anne at anne.wilson@jax.ufl.edu.



As always, please don’t hesitate to contact us should you have any questions.

Monday, February 15, 2010

Events at CARD

Upcoming Trainings/Events: 

·         Survey for Parents of Students with an Individual Educational Plan (IEP) in Exceptional Student Education (ESE). Beginning Feb 01 and ending July 01, 2010, the Florida Department of Education will be collecting parent surveys on “How well is your school supporting your involvement in your child’s education?” Follow this link to complete the survey: www.ESEsurvey.com. Results, which are reported directly to the United States Department of Education, will contribute to Florida’s Annual Performance Report and will be posted for the public at www.fldoe.org/ese.
·         CARD-Jacksonville Constituency Board Meeting: The next few meetings of the parent constituency board have been scheduled for February 16, 2010; April 13, 2010; July 27, 2010; September 21, 2010. The University of Florida at Jacksonville, Center for Autism and Related Disabilities has periodic meetings with its advisory committee. The public and individuals served by CARD are welcome to attend these Constituency Board meetings and provide input to the Board and CARD staff. All meetings will begin at 6pm and end at 7pm. Meetings will take place at The University of Florida, Developmental Pediatric Center located at 6271 St. Augustine Road, Suite 1, Jacksonville, Florida 32217.
·         “Developing Literacy in Students with Autism Spectrum Disorders -  February 19, 2010: Presented by Erin Swenson, BS. Erin Swenson is a teacher for a self-contained autism classroom in Clay County public schools. During this workshop, participants will learn how to increase the reading and writing skills of children with autism spectrum disorders. This presentation will focus on the development of skills for early learners who are reading and writing within the Kindergarten to 1st Grade levels. Participants will learn how to capitalize on students’ unique interests and strengths in order to deliver effective and meaningful instruction. All events listed run from 9:00 am to 4:00 pm, and are provided at no cost to participants. Registration information and location will be available soon!
·         Rising Stars Baseball: Registration Now Open. Practice begins February 27th and games start on March 13th. The Rising Stars Baseball Division of Ponte Vedra Athletic Association is created to give girls and boys 8-15 from the Jacksonville area who are unable to "SHINE" in our traditional little league an outlet to have fun with baseball, build self confidence, teamwork skills, lasting memories and friendships.  By creating ability-specific levels and a high coach to child ratio, RISING STARS BASEBALL is able to support a range of abilities: from mild coordination concerns to moderate gross motor planning challenges. For kids that have been apprehensive about baseball or didn't feel they were skilled enough, RISING STARS is also a great way to start playing the game. After two instructional practices the kids will be playing baseball in a "sandlot" format. The cost to participate  in RISING STARS is FREE due to league support and contributions of our sponsors; Microsoft, HEAL, and the Greenwood School and many individual supporters. For more information go to www.risingstarsbaseball.org.  
·         Inclusive Education for Children with Autism Spectrum Disorders- April 19, 2010:  Plot a Course, Set Sail, Have a Guide, Keep Learning,” Presented by Dr. Dennis Mozingo, BCBA-D. Dr. Mozingo is an Assistant Professor of Pediatrics in the Community Consultation Program of the Strong Center for Developmental Disabilities, Division of Neurodevelopmental and Behavioral Pediatrics, University of Rochester Medical Center. During this workshop, participants will learn how to plan for the inclusion of students with ASD in general education settings, prepare students for inclusion in ESE settings, support students with ASD in the general education setting, and monitor student performance. . All events listed run from 9:00 am to 4:00 pm, and are provided at no cost to participants. Registration information and location will be available soon!
·         Using Video Based Interventions to Support Individuals with Autism Spectrum Disorders- May 14, 2010: Presented by Dr. Linda LeBlanc, BCBA-D. Dr. Le Blanc is an Associate Professor in Psychology for the University of Auburn. Video modeling is an instructional technique that can be used to teach social skills, academic skills, and daily living skills and play skills to children with autism. This workshop will review the important components of effective video models, examine the research support for use of video models, and demonstrate ways to incorporate video when using other instructional procedures. . All events listed run from 9:00 am to 4:00 pm, and are provided at no cost to participants. Registration information and location will be available soon!
Flyers for these events can be accessed online @ http://www.hscj.ufl.edu/pediatrics/autism/calendar_events.asp
 
CARD Logo_02_gif.gif
Ongoing Clinics & Programs:

Ø  CARD Toy Bank Program: UF-Jacksonville CARD would like to build a Toy Bank where families in need can get toys and educational materials for use with their child. Please consider donating any of your slightly or unused toys, books, educational items, folder games, visual supports, or other materials to our center to support other families. To donate, please drop your materials to the front office at: UF-Jacksonville CARD, 6271-1 St. Augustine Rd., Jacksonville, FL 32207, For more information please call 633-0760

Ø  Social Skills and Support Groups: Dr. Maria Tapia, Licensed Psychologist with the UF/Jacksonville's CARD program, runs several groups for adolescents and adults with Asperger Syndrome, as well as, for their siblings and mothers. If you are interested in joining any of these groups or gathering additional information, such as date, time and ages, please contact Dr. Tapia at maria.tapia@jax.ufl.edu or 633-0760.
 
Ø  Dr. Barker has developed a parent training program to address the topic of, “Learning to play with your child with autism.” Log onto http://card-usf.fmhi.usf.edu/online_training.asp and click on the PowerPoint presentation entitled: “Learning to play with your child with autism”. Be sure you have reviewed the appropriate directions which are attached to this update. If you are a parent or caregiver, download play training directions and if you are a professional or trainer, download play training professional letter. Please email mae.barker@jax.ufl.edu with any questions or concerns.
 
Ø  “Promoting Positive Behavior Change”: This clinic will be replacing the Positive Parenting series that was previously being run Dr. Mae Barker. This clinic is an overview of Pivotal Response, using reinforcement, addressing challenging behaviors and setting up the home environment. This would be great for families of children who have been recently diagnosed on the autism spectrum or parents of older children who simply need a refresher on the basics. Contact Dr. Barker at mae.barker@jax.ufl.edu.
 
Ø  “Behavioral Detective” Social Skills Camp: This clinic offered by Katrina Ressa, B.S., BCaBA, & Anthony Rhodes, M.S., CARD Educational Coordinators, is a 7-week long camp for children diagnosed with Asperger Syndrome or HFA ages 6-12.  This camp targets skills such as conversational skills, anger management, accepting making mistakes, being more flexible and more.  For more information on signing up for our spring camp, please contact Katrina at katrina.ressa@jax.ufl.edu.
 
Ø  Pre-K Social Skills Clinic:  This clinic, offered by Elise Bowers, M.A., CARD Educational Coordinator is offered in two sessions: emergent-language and verbal.  Parents will learn strategies for engaging their child, promoting communication and conversation, turn-taking, developing joint attention and other social skills.  Parents will also learn how to practice, prompt and reinforce their child’s socialization.  For more information, please contact Elise at elise.bowers@jax.ufl.edu.
 
Ø  Feeding and Eating Clinic for Individuals with Autism Spectrum Disorder: Dr. Mae Barker is collaborating with Lori Allen, MS, CCC-SLP and Emilie Balkman, MPH, RD, LDN to provide a comprehensive feeding and eating clinic for individuals. Children and their caregivers are taught strategies to improve their eating habits, behavior surrounding feeding times and overall attitude towards food. Please contact Dr. Barker for more information and available clinic dates at mae.barker@jax.ufl.edu.
 
Ø  Two Feet Forward:  This clinic, offered by Anne Wilson, MST, BCaBA, CARD Educational Coordinator, is for parents of a student in transition.  During the meetings parents will learn about transition issues including IEPs & Transition IEPs, Self-Determination & Self-Advocacy, Portfolios, Interest Inventories & Assessments, Post-Secondary Options, Government Benefits, Service Providers & Changes in Services , Barriers, Work Related Issues, and much more!  For more information, please contact Anne at anne.wilson@jax.ufl.edu.
 
Ø  Discovering Capabilities:  This clinic will be offered by Anne Wilson, MST, BCaBA, CARD Educational Coordinator. This is a student and parent support group. Students discover who they are, what their strengths and talents are, what they want to do in the future, how will they get where they want to be, and who will provide their supports. Discovery provides direction for future career development. Information gathered is placed in a Student Profile for the purpose of sharing the information for job development.  The information guides the selection or creation of future jobs in the community. Discovery is for students: between the ages 16 – 19, in transition, planning their future or need guidance planning their future, developing a future plan, identifying individual strengths, needs, etc., writing goals, and identifying supports.  For more information, please contact Anne at anne.wilson@jax.ufl.edu. 

Friday, February 5, 2010

Epsom Salts as a Treatment for Autism

On the "Autism Retort" Blog I came across the article "Epsom Salts for Autism" and was elated that I was not the only one in the world who has used epsom salts successfully with my autisic son.

About three years ago, I took my son off of all of his medications because of toxic side-effects.  Not the best idea and he suffered greatly for about three weeks from withdrawals.  One day, he had what I called "the mother of all meltdowns", I thought a warm bath would sooth him.  As he thrashed and screamed, I only found a tiny amount of bubble bath in the hopes that it may calm him.  While I desperately searched for the bubble bath I came across a  long forgotten container of epsom salt that was about 1/2 full.  I said to myself as I dumped it in the bath water, that it couldn't hurt. 

What happened 40 minutes later was nothing short of a miracle.  My son, who was hyperactive beyond belief (his "normal" self), was calm and still.  Looking back, I would say without exaggeration that he was serene.  I helped him dry off, change into pajamas.  He came to the living room, pulled out a book, came to the couch and sat next to me, and for the first time ever, he read a book...out loud...to me something I never knew he could do! Indeed it was a miracle and I will sing the praises of epsom salts as a therapy that worked for my son to anyone who will listen.  After a few days, his grandparents noticed a remarkable change.  After a couple of weeks, his teachers noticed a definite change.  He had an epsom salt bath every day.

If you think epsom salt baths may be therapeutic and you wish to give it a try, check with your doctor first.  This article is my personal testimony and in no way is to be substituted for medical advice.  However, that said, I encourage you to approach your doctor who knows your child's specific case (or your own if you are an adult with autism or ADHD).

Now, you parents and caregivers who give all you have for your children with autism, take a tip from me...enjoy your own epsom salt bath (2 cups) and follow up the last 5 minutes of your bath with a couple of drops of olive oil to avoid itchy skin.  Don't rinse off.  You more than deserve that little bit of pampering to keep you going!

Regards,
Maggie